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Meet MyAutismTeam In Denver Sept. 6-9, 2012

Meet Us At the USAAA Conference

The US Autism and Asperger Association conference starts Thursday Sept. 6th and concludes Sunday Sept. 9th. Among the many notable speakers, like Temple Grandin, MyAutismTeam co-founder & CEO Eric Peacock will be presenting “10 Lessons Learned from 25,000 Parents”  on Saturday at 1PM.
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Is it worth getting diagnostic tests for autism spectrum disorders?

Are you a parent exploring the current genetic tests available for autism? If so, it turns out you’re not alone. 

Three months ago while attending the Stanford University Autism Symposium, I had the good fortune of listening to a panel discussion about genetic testing in autism.  The panel was titled, “Diagnostic or Treatment Value of Genetic Testing for Autism Spectrum Disorders” and it was hosted by three brilliant, compassionate, dedicated autism experts – Drs. Joachim Hallmayer, Jonathan Bernstein and Wendy Froehlich.  These folks had a tough job.  As the three experts in a room filled with 30-40 eager parents of children with autism, they had to portray the hope and potential of genetic diagnostic testing in autism, while simultaneously explaining how little it can actually do for parents right now.
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School’s Out for Summer — But Fears of Regression Looms for Parents of Kids with Autism

“I Hate Summer” was a recent post by Laura Rossi Totten on The Huffington Post. She writes,

Special Needs Parenting is challenging 365 days of the year. Unlike the shorter winter break or spring vacation, summer is unique because it is long and most special needs children now expect the routine, support, predictability and familiarity of the school year. Frequently, school-age special needs children struggle with the concept of time and that contributes to the confusion and anxiety many children experience during these three months.

What’s a parent to do? What options exist?

For parents who are looking for ways to keep their kids progressing (whether they’re Aspies, high-functioning, or non-verbal), there are few inexpensive options to turn to during the summer months. We recently spoke with Robyn Catagnus, EdD, BCBA-D of Rethink Autism to learn more about the online curriculum they offer parents.
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Are You Missing Out On This 1-Day Conference for Bay Area Autism Parents?

Get PRACTICAL information that can help with parenting your child diagnosed with ASD at the one-day Annual ASD Symposium: Translating Science into Treatment Stanford Autism Center.This one-day event on Saturday, May 12th will be full of useful sessions to help you:

  • address feeding and digestive issues
  • decode your child’s most difficult behaviors
  • address sleep issues
  • learn more about adaptive skills for your teenager
  • know your legal rights when it comes to special needs in schools
  • translate the science of sensory, motor coordination, and speech pathology

BONUS: receive $25 off the price of admission if you’re one of the first 10 parents to email (Total cost after discount is $75.00).

Please share with other Bay Area parents. Our goal is to continuously bring you more discounts to events, products or services that empower you to help your child thrive.

How to Find “Great” Parents to Connect With on MyAutismTeam

Part 2

Breaking the Ice

This is part 2 of 2 from the series is to help you get to know more great parents on MyAutismTeam. When making valuable connections and friendships, the first place to start is with oneself (see part 1 here). The next part is even easier.
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How to Find Great Parents to Connect With on MyAutismTeam

Part 1

Maximize MyAutismTeam, by sharing a little bit about yourself. This two-part series is to help you get to know more great parents on MyAutismTeam. When making valuable connections and friendships, it’s always valuable to start with oneself.

Begin With You

Getting started: Consider the value of customizing your own profile on MyAutismTeam. Whenever we hear something kind or insightful from someone, we have a natural tendency to want to know the person who said it. At a glance, a photo of yourself adds more personality, and builds trust in the community since your profile photo can be a large part of your identity on the site.  
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A Parent’s Toxic Cocktail: Worry & Sleeplessness

Below is an exclusive inside peak of Carly’s Voice, only available here on MyAutismTeam. Special thanks to MyAutismTeam Guest Blogger  & author of Carly’s Voice, Arthur Fleischmann.

Sometimes small worries are the biggest. Of course parents of kids with challenges worry about their future; their happiness; their loneliness and isolation. But because our daughter only seemed to have an on and off switch, no calm in-between, I worried most about night times and what fresh hell might be unleashed during those gauzy hours between midnight and dawn.

Here is an excerpt, “Sleepness” from the book, Carly’s Voice, I wrote with my daughter Carly.
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5 Great Autism Books for Parents

What better time than Autism Awareness month to take a moment to read through scores of fantastic books for parents of children with autism.  Here are five great ones – each coming at the topic from different perspectives.

1. The Thinking Person’s Guide to Autism -  What you really need to know about autism: from autistics, parents and professionals – Edited by Shannon Des Roches Rosa, Jennifer Byde Myers, Liz Ditz, Emily Willingham and Carol Greenberg.
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Fending Off Isolation – 5 Tips from Parents of Kids with Autism

“After my son was diagnosed with autism, we felt alone.  We had no idea what to do, or who to turn to.  Our friends couldn’t really help us.  We felt isolated, like we were re-inventing the wheel.”

While this quote is from the mother of a six-year old boy diagnosed with autism three years ago, it could have come from any parent of a child with special needs.  Feelings of isolation often start with the diagnosis.  Family and friends on Facebook may want to help, but usually do not have the foggiest idea what it truly means to have a child with autism, ADHD, Down’s Syndrome, or any other special need.  What’s more, they may even offer unhelpful advice or judgments that further isolate an already stressed out parent.
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MyAutismTeam Reaches 20,000 U.S. Parents, and Debuts in Canada

In March, we reached a special milestone: over 20,000 U.S. parents have signed up for MyAutismTeam. This phenomenal growth is a testament to the vibrant and accepting community each of you, as parents with kids on the spectrum, has shaped on MyAutismTeam.
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