The social network for parents of kids with autism

Archive for the ‘parenting children with autism’ Category

How Do You Do It All?

The following is a personal story written by Alicia, an ambassador of MyAutismTeam, the social network for parents of children of all ages with autism.  Below she shares the story of how she and her family balance the challenges and triumphs of life.  If you are a parent of a child with ASD, go to MyAutismTeam and connect with other parents who ‘get it.’ Thousands of parents from all over the country are here to share not only their stories, but their daily lives: the good days, bad days and the accomplishments!

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Just recently I was asked by a new friend, “How do you do it?” I responded somewhat perplexed. “How do I do what?” She went on to alicia pictureelaborate, asking me how do I raise three young boys, with two on the spectrum, while living on a single income and living with the constant pain of multiple sclerosis? I honestly rarely stop to ponder my situation because honestly I see it as a way of life and not a situation. Soon after, another friend asked me this and then I began to notice the number of parents on MyAutismTeam that were asking similar questions. read more…

Our Story – My Tristan

The following is a personal story written by Juliet, an ambassador of MyAutismTeam, the social network for parents of children of all ages with autism.  Below she shares the story of her family and her son Tristan.  If you are a parent of a child with ASD, go to MyAutismTeam and connect with other parents who ‘get it.’ Thousands of parents from all over the country are here to share not only their stories, but their daily lives: the good days, bad days and the triumphs!

He was extremely colicky as an infant. Midnight car rides almost every night, he slept no longer than a couple hours, at most,Tristan during the day, and began digestive issues as young as two months old.  Literally, my husband and I were tired and grumpy all the time hoping this stage would someday be behind us.
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Autism Parents Share: 8 Tips For Keeping It Romantic In A Marriage

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Having a child with autism can be tough on a marriage. Besides the emotional and financial strains that come from providing for a child with autism, there’s a huge time commitment involved with therapies and medical appointments. All that responsibility and pressure can make it difficult to have time or energy left for romance. So what are moms and dads to do? We asked parents on MyAutismTeam how they “keep the romance alive” in their marriages. These are their tips, most of which apply to any busy parent!
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7 Tips from Autism Parents on How They “Keep the Romance Alive” with their Spouses

Having a child with autism can put stress on a marriage. Ask veteran autism parents, “What do you wish you knew then that you know now?” and many say that they wish they’d spent more time maintaining their relationships with their significant others before the relationships fell apart.

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Here are 7 quick tips shared by parents on MyAutismTeam for “keeping the romance alive”.  These are all from parents who have children on the autism spectrum. read more…

Finding an Autism-Friendly Sitter

Recently, several parents on MyAutismTeam were comparing notes on how to find autism-friendly babysitters and one mom mentioned the website Sittercity.com as a potential source. I was intrigued.  We’re always looking for good resources for MyAutismTeam parents but wondered if Sittercity, a website aimed at finding babysitters for the mass market, could be of any use to parents of kids with autism?

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I decided to conduct a little test – be a secret shopper so to speak – and the results (explained below) really surprised me.  It may be a great resource for many of you.  We’ve negotiated a free trial and 50% discount for all MyAutismTeam parents so you can try it out yourself.
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MyAutismTeam Discount for Financial Planning, Special Needs Trust

In researching the blog post Special Needs Trusts, Financial Planning & LifeCare Plans – Planning the Future of Your Child with Autism, we spent a good deal of time interviewing two Special Care Planners from Miceli Financial Partners, Nick Homer and Ken Prodger.

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Nick and Ken are based in San Jose, CA and both come highly recommended from other parents on MyAutismTeam.  Both are affiliated with the Mass Mutual Special Care Program, have extensive experience working with families with autism and special needs (one of them is the father of a child with special needs),  and they serve families all through northern California.  As a pilot test of a program that could expand nationally, MyAutismTeam has established a partnership with Miceli Financial Partners that offers full special needs financial planning at a discounted rate for MyAutismTeam parents.  
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Embracing the Positives & Exorcising the Negatives around Autism – One Dad’s Journey

In this guest blog post, Tom Wailgum, father of twin boys on the autism spectrum talks about how he and his wife have adjusted their communications with each other and with their boys to focus on the positive. – Eric

Never Never Never Never Never – by Tom Wailgum

One of the most challenging aspects of raising children on the autism spectrum is conquering the feelings of negativity that pervade everyday life. It can come from friends or family members. From co-workers. From the media. From strangers in the grocery store. From yourself. I know I’ve struggled with overcoming my own negativity while raising our twin sons, who are on the spectrum.
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Temple Grandin on the Importance of Giving Kids with Autism a “50’s Upbringing”

Friday night I had the honor of meeting Dr. Temple Grandin – the noted cattle expert, autism authority, and one of the most famous and successful people on the autism spectrum.  We were both speaking at the US Autism & Asperger Association Conference in Denver and when we met at the speaker’s dinner I told Temple, “I am the co-founder of MyAutismTeam – a social network for parents of kids with autism.”
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The Trouble With Eye Contact

Navigating Asperger’s and reflecting on other learning differences

by Michael McManmon, Ed.D., (originally published in Psychology Today)

SHIFT HAPPENS: Letting go can make all the difference

I was recently speaking with some college students about cognitive rigidity and transitions. We were discussing how, as a young adult on the autism spectrum, shifting to the next stage of their life can be difficult for not only themselves but also their parents. I asked them to attempt to take perspective of the situation their parents are facing.
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School’s Out for Summer — But Fears of Regression Looms for Parents of Kids with Autism

“I Hate Summer” was a recent post by Laura Rossi Totten on The Huffington Post. She writes,

Special Needs Parenting is challenging 365 days of the year. Unlike the shorter winter break or spring vacation, summer is unique because it is long and most special needs children now expect the routine, support, predictability and familiarity of the school year. Frequently, school-age special needs children struggle with the concept of time and that contributes to the confusion and anxiety many children experience during these three months.

What’s a parent to do? What options exist?

For parents who are looking for ways to keep their kids progressing (whether they’re Aspies, high-functioning, or non-verbal), there are few inexpensive options to turn to during the summer months. We recently spoke with Robyn Catagnus, EdD, BCBA-D of Rethink Autism to learn more about the online curriculum they offer parents.
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